Under 16 Cancer Patient Experience Survey

A diagnosis of childhood cancer understandably has a devastating impact on the emotional health and wellbeing of the child and their family, both during and after treatment. Children and young people’s treatment and experience of cancer differs greatly from adults and we recognise the need for a personalised approach to their cancer care.

It’s so important for us to listen and learn from children and young people in order to provide them with the best possible care and experience throughout treatment and to reduce the impact it has on them later in life.

Today (27th October 2021) the first set of results have shown us that 95% of children with cancer aged between eight and 15 felt they were looked after well by NHS healthcare staff during 2020 and 92% of parents/carers rated the overall experience of their child’s care as 8 or more out of 10.

It is encouraging to see that children and their parents rate the care and treatment they received positively and this survey is an opportunity to identify what’s working and what could be done better, engaging with patients, parents, NHS cancer staff and charities.

A webinar is being held on the 2nd of December 2021 to discuss the results of the survey. You can register for the webinar at www.events.england.nhs.uk/events/u16-cpes-webinar.

For more information and to view the full set of results visit

www.under16cancerexperiencesurvey.co.uk/results.