Call for evidence on the lives of people with Down’s syndrome

DHSC has today (19 July) launched a call for evidence to ensure better access to health, education, social care and housing for people with Down’s syndrome.

  • People with Down’s syndrome, families, professionals and charities are invited to share their experiences and expertise which will be used to shape new guidance for authorities to follow.
  • Life expectancy has increased from 13 to almost 60 within a generation and services are needed to support the more than 40,000 people with Down’s syndrome and their families.

The new guidance intends to help ensure those with Down’s syndrome receive the care and support they need to live longer, happier and healthier lives.

The call for evidence is focused on Down’s syndrome but will also test whether the guidance can benefit other people too. Those with a different genetic condition, as well as their families and carers, are invited to contribute.

This consultation will run for a period of 16 weeks and is open to everyone.



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